Giving Credence to the Experience of X-Linked Hypophosphatemia in Adulthood: An Interprofessional Mixed-Methods Study

X-linked hypophosphatemia (XLH) is a rare X-linked dominant metabolic bone disease, often diagnosed in childhood but causing increasing physical debilitation and pain in adulthood. This mixed-methods analysis included physical findings, diagnostic imaging, occupational and physical therapy assessments, and semi-structured interviews by social work to understand the functional outcomes and lived experience of XLH in adulthood, through connections between qualitative data obtained by social work and occupational therapy with the quantitative findings from other disciplines.

Learning Objectives

At the end of this session, learners should be able to:

  1. Understand and apply the wide array of evidence-based medicine, guidelines and best practices required for optimal patient care.
  2. Recognize the patient's perspective and show proper communication skills and shared decision making.
Course summary
Available credit: 
  • 1.00 AMA PRA Category 1 Credit™
    Aurora Health Care is accredited by the Wisconsin Medical Society to provide continuing medical education for physicians. Aurora Health Care designates this activity for a maximum of 1.00 AMA PRA Category 1 Credit(s)TM. Physicians should only claim credit commensurate with the extent of their participation in the activity.
  • 1.00 Attendance
    Attendance Credit
    • 1.00 Approved AMA PRA Category 1 Credit™
Course opens: 
04/14/2020
Course expires: 
07/31/2022
Cost:
$0.00
Part of: 
Journal of Patient-Centered Research and Reviews Articles
Rating: 
0

Faculty

Dennis Baumgardner, MD; Advocate Aurora Health
Joseph Grundle; Advocate Aurora Health

Disclosure

The planner(s) and speaker(s) have indicated that there are no relevant financial relationships with any ineligible companies to disclose.

Accreditation Statement
In support of improving patient care, Advocate Aurora Health is jointly accredited by the Accreditation Council for Continuing Medical Education (ACCME), the Accreditation Council for Pharmacy Education (ACPE), and the American Nurses Credentialing Center (ANCC), to provide continuing education for the healthcare team.

 

Credit Statement(s)

American Medical Association (AMA) 
Advocate Aurora Health designates this enduring activity for a maximum of 1.00 AMA PRA Category 1 Credits™.  Physicians should claim only the credit commensurate with the extent of their participation in the activity.

 

Available Credit

  • 1.00 AMA PRA Category 1 Credit™
    Aurora Health Care is accredited by the Wisconsin Medical Society to provide continuing medical education for physicians. Aurora Health Care designates this activity for a maximum of 1.00 AMA PRA Category 1 Credit(s)TM. Physicians should only claim credit commensurate with the extent of their participation in the activity.
  • 1.00 Attendance
    Attendance Credit
    • 1.00 Approved AMA PRA Category 1 Credit™

Price

Cost:
$0.00
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If you need help enrolling or logging in, please contact the Advocate Aurora CME Office at cme@aurora.org